Cost without subsidy

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

the reply above said something I want to sit with for a second.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.