A peer support community, independent and not for sale. Since February 2024.
Loose skin and the industry that appeared overnight Writing it down partly to work out what I actually think.
I have been sitting on this for a month.
My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.
I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.
Thanks all. Genuinely.
31
I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.
5
Gently disagreeing with the opening post, or rather adding the other half of it.
Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.
16
The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.
7me too 3
Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.
6
Yes to the burping. It is real, it is unbeautiful, and it does settle.
9
I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.
8
Reading the reply above, I recognised more of that than I expected to.
My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.
8
Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?
7me too 8
Reading the reply above, I recognised more of that than I expected to.
The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.
6
Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.
5me too 7
Gently: you have apologised three times in a post where you have done nothing that requires an apology.
6me too 7
For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.
9