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Greek availability month to month

Started 27 January 2026 · 18 replies · 144 hearts · read 2.2k times

PolaGdańsk, PL · 27 January 2026
6 months ago

Starting a thread on this because it keeps coming up in ones and twos: Greek availability month to month

Anyone else here in my part of the world? I would like to compare notes.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

48

BastianFreiburg, DE
#1

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7

LinneaTurku, FI
#2

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

NoorFacilitatorSingapore
#3

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

14me too 8

LenaMunich, DE
#4

the opening post said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

MarenBremen, DE
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

6

CasperOdense, DK
#6

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

PersisBristol, UK
#7

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5

RomyVienna, AT
#8

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8me too 4

AleksLjubljana, SI
#9

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10me too 9

TobiasHamburg, DE
#10

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

4

GilTel Aviv, IL
#11

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

6

BettinaGraz, AT
#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7

ZenBristol, UK
#13

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

TychoLeiden, NL
#14

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8me too 3

GigiNaples, IT
#15

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9

ZoraSarajevo, BA
#16

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6

NoorFacilitatorSingapore
#17

the reply above said something I want to sit with for a second.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

15me too 8

BrackAlnwick, UK
#18

I did exactly the same and felt terrible about it. You have not done anything wrong.

5