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Injection anxiety

Somebody stayed on a call with me and I did it

Started 26 May 2024 · 15 replies · 190 hearts · read 1.8k times

GaelanInverurie, UK · 26 May 2024
2.2 years ago

Something I have been sitting with: Somebody stayed on a call with me and I did it Not looking for advice so much as other people's experience.

Something is going on with my body and I would like to know whether it is ordinary.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Not looking for a plan. Just company and whatever anyone has found.

63

GwynforLlanidloes, UK
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12me too 6

TedIpswich, UK
#2

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

16

EsiFacilitatorToronto, Canada
#3

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

20

BrodyDunfermline, UK
#4

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6

SableCape Town, ZA
#5

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

NadirCasablanca, MA
#6

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

11

BrackAlnwick, UK
#7

Building on what the reply above wrote rather than answering the original question.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

IslaOban, UK
#8

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

13

PerrineStrasbourg, FR
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

12

CatoAntwerp, BE
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8

TabbyMargate, UK
#11

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

15

Ozzy GWalsall, UK
#12

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

DelythBala, UK
#13

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

12

EsiFacilitatorToronto, Canada
#14

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

21me too 6

ZoëHackney, UK
#15

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

15