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Two years and my only news is that there is no news

Started 23 February 2026 · 12 replies · 88 hearts · read 1.9k times

BarnabyWinchester, UK · 23 February 2026
5 months ago

Two years and my only news is that there is no news — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

29

GwionBangor, UK
#1

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5

RayBarnsley, UK
#2

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

6me too 2

PamSouthport, UK
#3

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10

BenediktFacilitatorVienna, Austria
#4

the opening post — yes, and the bit that took me longest to accept was the next part.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

10

NedChesterfield, UK
#5

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6

IlseMaastricht, NL
#6

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

5me too 7

BramwellNottingham, UK
#7

Reading the reply above, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

HettyCambridge, UK
#8

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

HéloïseGeneva, CH
#9

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10me too 9

RomyVienna, AT
#10

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

5

BenediktFacilitatorVienna, Austria
#11

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

9

FreyaReykjavík, IS
#12

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

5