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Texture changes nobody warned me about

Started 22 May 2026 · 13 replies · 93 hearts · read 1.9k times

NixLeith, UK · 22 May 2026
2 months ago

Starting a thread on this because it keeps coming up in ones and twos: Texture changes nobody warned me about

This is a difficult one to write and I have deleted it twice.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

31

EsmeAix-en-Provence, FR
#1

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8me too 4

KikiFacilitatorGlasgow, UK
#2

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

9

TobiasHamburg, DE
#3

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

9

SoniaValencia, ES
#4

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

6

GwilymCaernarfon, UK
#5

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

AnnikaStockholm, SE
#6

Reading the reply above, I recognised more of that than I expected to.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

3me too 8

LeifTrondheim, NO
#7

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

6

TarqWindsor, UK
#8

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

WilfStoke, UK
#9

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

2

TacitaRome, IT
#10

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

Bryn MNeath, UK
#11

Reading the reply above, I recognised more of that than I expected to.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

KikiFacilitatorGlasgow, UK
#12

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

13me too 9

EsmeAix-en-Provence, FR
#13

What helped was lowering my own expectations of the week rather than trying to hold the week together.

7