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My father asked whether it was safe and he was right to

Started 4 September 2025 · 14 replies · 122 hearts · read 1.2k times

ObiLagos, NG · 4 September 2025
10 months ago

A question rather than an update: My father asked whether it was safe and he was right to

Practical question, and possibly a silly one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Not looking for a plan. Just company and whatever anyone has found.

41

BessLouth, UK
#1

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

10

OssieWolverhampton, UK
#2

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

21me too 4

NolwennRennes, FR
#4

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

5

CormacWaterford, IE
#5

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

TeganNewport, UK
#6

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

5me too 8

OmarAmman, JO
#7

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

MapleToronto, CA
#8

Please do not read the comments under news articles about this. I lost a fortnight to that.

6

RufusGuildford, UK
#9

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

4

OzrenZagreb, HR
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7

RuaridhFort William, UK
#11

the reply above — yes, and the bit that took me longest to accept was the next part.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

7

ObiLagos, NG
#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

18

OssieWolverhampton, UK
#14

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

5