Being the supportive one and getting tired

Started 8 December 2024 · 20 replies · 221 hearts · read 1.9k times

CormacWaterford, IE · 8 December 2024

1.6 years ago

A question rather than an update: Being the supportive one and getting tired

Practical question, and possibly a silly one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

TeganNewport, UK

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

MapleToronto, CA

the opening post said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

RufusGuildford, UK

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9me too 9

WrenFacilitatorLeeds, UK

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

OzrenZagreb, HR

What helped was lowering my own expectations of the week rather than trying to hold the week together.

OmarAmman, JO

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

BessLouth, UK

Building on what the reply above wrote rather than answering the original question.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

NolwennRennes, FR

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

13me too 5

NikitaYerevan, AM

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

10me too 1

RuaridhFort William, UK

#10

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

ObiLagos, NG

#11

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11me too 8

CormacWaterford, IE

#12

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

TeganNewport, UK

#13

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

MapleToronto, CA

#14

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

RufusGuildford, UK

#15

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

OssieWolverhampton, UK

#16

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

OzrenZagreb, HR

#17

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

OmarAmman, JO

#18

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

11me too 9

WrenFacilitatorLeeds, UK

#19

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

NolwennRennes, FR

#20

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.