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The relative who keeps offering food as a test

Started 20 October 2024 · 24 replies · 269 hearts · read 4.9k times

RufusGuildford, UK · 20 October 2024
1.7 years ago

Something I have been sitting with: The relative who keeps offering food as a test Not looking for advice so much as other people's experience.

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

90

BessLouth, UK
#1

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9

ObiLagos, NG
#2

the opening post — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

14

CormacWaterford, IE
#4

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

11me too 2

TeganNewport, UK
#5

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12me too 7

OmarAmman, JO
#6

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

NolwennRennes, FR
#7

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

13

MapleToronto, CA
#8

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

11

RuaridhFort William, UK
#9

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12

OssieWolverhampton, UK
#10

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

NikitaYerevan, AM
#11

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11me too 1

RufusGuildford, UK
#12

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

13

BessLouth, UK
#13

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

11

ObiLagos, NG
#14

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

14

OzrenZagreb, HR
#15

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

9

CormacWaterford, IE
#16

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

12

TeganNewport, UK
#17

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8

OmarAmman, JO
#18

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10me too 2

NolwennRennes, FR
#19

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

6

MapleToronto, CA
#20

Building on what the reply above wrote rather than answering the original question.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11

RuaridhFort William, UK
#21

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

11

OssieWolverhampton, UK
#22

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

WrenFacilitatorLeeds, UK
#23

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

17

RufusGuildford, UK
#24

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11