Asking my prescriber about a lower maintenance dose for cost reasons

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.