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Sleep and fatigue

Fatigue and long covid together — untangling them

Started 13 January 2025 · 20 replies · 207 hearts · read 2.8k times

TychoLeiden, NL · 13 January 2025
1.5 years ago

A question rather than an update: Fatigue and long covid together — untangling them

Squeamish subject, so I am going to be plain about it and get it over with.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

69

BassCoventry, UK
#1

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

SamPortland, OR
#2

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12

the reply above said something I want to sit with for a second.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

17me too 9

RuthieLeicester, UK
#4

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10

Ollie OPeterhead, UK
#5

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11

NkemPort Harcourt, NG
#6

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6me too 2

OrrinGlasgow, UK
#7

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8

HollisBath, UK
#8

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

5

RunaAarhus, DK
#9

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

TobySwindon, UK
#10

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

15

LeifTrondheim, NO
#11

Please do not read the comments under news articles about this. I lost a fortnight to that.

6me too 9

PeggyRotherham, UK
#12

the reply above — yes, and the bit that took me longest to accept was the next part.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10

GethinMerthyr Tydfil, UK
#13

What the reply above described happened to me too, in a slightly different order.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8

TorrinAberdeen, UK
#14

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

12

RufusGuildford, UK
#15

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10

GigiNaples, IT
#16

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

13

NettieBarrow, UK
#17

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

12

KezWigan, UK
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

6me too 4

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

20

SinéadCork, IE
#20

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8