A fortnight of flatness that was actually a virus

Started 21 October 2024 · 19 replies · 220 hearts · read 2.3k times

RillaAberdeen, UK · 21 October 2024

1.7 years ago

A fortnight of flatness that was actually a virus Writing it down partly to work out what I actually think.

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

Sorry for the length. If anyone has been here, I would very much like to hear it.

KezWigan, UK

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

MarenBremen, DE

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

TychoLeiden, NL

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

KikiFacilitatorGlasgow, UK

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

NorahDerry, NI

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

GildaTrieste, IT

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13me too 1

SunnivaBodø, NO

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

NettieBarrow, UK

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

NilsUppsala, SE

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

AshSunderland, UK

#10

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

NoahHull, UK

#11

What helped was lowering my own expectations of the week rather than trying to hold the week together.

BassCoventry, UK

#12

Please do not read the comments under news articles about this. I lost a fortnight to that.

HuwWrexham, UK

#13

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11me too 1

GigiNaples, IT

#14

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

OssianTromsø, NO

#15

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

OrrinGlasgow, UK

#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

SinéadCork, IE

#17

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

KikiFacilitatorGlasgow, UK

#18

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

27me too 6

LeifTrondheim, NO

#19

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

11me too 5