Not eating enough was the cause, it turned out

Started 18 May 2024 · 24 replies · 302 hearts · read 3.4k times

TorrinAberdeen, UK · 18 May 2024

2.2 years ago

Starting a thread on this because it keeps coming up in ones and twos: Not eating enough was the cause, it turned out

I have avoided asking about this for six weeks out of pure embarrassment.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

101

KezWigan, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

TychoLeiden, NL

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

PeggyRotherham, UK

Yes to the burping. It is real, it is unbeautiful, and it does settle.

KikiFacilitatorGlasgow, UK

Gently disagreeing with the opening post, or rather adding the other half of it.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

NorahDerry, NI

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

AshSunderland, UK

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

13me too 3

RunaAarhus, DK

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

TorinBelfast, NI

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

SinéadCork, IE

What helped was lowering my own expectations of the week rather than trying to hold the week together.

OrrinGlasgow, UK

#10

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

LeifTrondheim, NO

#11

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

BassCoventry, UK

#12

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

MarenBremen, DE

#13

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

GethinMerthyr Tydfil, UK

#14

Building on what the reply above wrote rather than answering the original question.

I did exactly the same and felt terrible about it. You have not done anything wrong.

RufusGuildford, UK

#15

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

BrunoMilan, IT

#16

What the reply above described happened to me too, in a slightly different order.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TobySwindon, UK

#17

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

14me too 7

NettieBarrow, UK

#18

Please do not read the comments under news articles about this. I lost a fortnight to that.

OssianTromsø, NO

#19

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10me too 5

RillaAberdeen, UK

#20

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

GigiNaples, IT

#21

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

HuwWrexham, UK

#22

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

KikiFacilitatorGlasgow, UK

#23

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

22me too 8

NkemPort Harcourt, NG

#24

the reply above said something I want to sit with for a second.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.