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The risks nobody can remove, listed plainly

Started 14 February 2025 · 20 replies · 220 hearts · read 3k times

PerrinNice, FR · 14 February 2025
1.4 years ago

The risks nobody can remove, listed plainly — putting it in its own thread so it does not get lost in the check-in.

I have read the paper and I am not sure I have understood it.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

73

GittaBonn, DE
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12

SunilFacilitatorBirmingham, UK
#2

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

18

LucasSão Paulo, BR
#3

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

BramberSteyning, UK
#4

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

11me too 1

TamsinRedruth, UK
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12

NolCork, IE
#6

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

8

SindriReykjavík, IS
#7

I did exactly the same and felt terrible about it. You have not done anything wrong.

11me too 6

ShadeIbadan, NG
#8

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6

NazneenDhaka, BD
#9

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10

SaskiaThe Hague, NL
#10

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

13

OsipTbilisi, GE
#11

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

NylaNairobi, KE
#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

9

Ollie OPeterhead, UK
#13

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9me too 5

TemSouthend, UK
#14

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

TaviaPalermo, IT
#15

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

14

PerrinNice, FR
#16

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

12

GittaBonn, DE
#17

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10

GwionBangor, UK
#18

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8me too 1

BramberSteyning, UK
#20

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

7