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Travelling in 38 degrees

Started 29 January 2026 · 16 replies · 120 hearts · read 2k times

BrackenHexham, UK · 29 January 2026
6 months ago

A question rather than an update: Travelling in 38 degrees

The logistics of this are defeating me more than the medicine is.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

40

OzrenZagreb, HR
#1

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

DuncanPerth, UK
#2

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7

NúriaBarcelona, ES
#3

Please do not read the comments under news articles about this. I lost a fortnight to that.

5

NoorFacilitatorSingapore
#4

What the reply above described happened to me too, in a slightly different order.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

12me too 6

NoleneDurban, ZA
#5

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

7

VeraRiga, LV
#6

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

MinnieDoncaster, UK
#7

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

5me too 3

MimiHong Kong
#8

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

OzzyAdelaide, AU
#9

I did exactly the same and felt terrible about it. You have not done anything wrong.

7

NissaHaifa, IL
#10

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11me too 3

PrunellaBury St Edmunds, UK
#11

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

4

IzoldaVilnius, LT
#12

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

TamarPlymouth, UK
#13

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

5

SalmaManchester, UK
#14

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

10me too 2

NoorFacilitatorSingapore
#15

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

10

TullaTralee, IE
#16

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6