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The first twelve weeks · call recap

The week the tiredness arrived

19 June 202413 attendedHeld by Esi

Fatigue took the whole hour, which happens roughly every second month in this circle and I have stopped resisting it. Eight of the thirteen were somewhere in weeks three to six and describing the same thing in different words: not sleepy, not ill, just operating at a lower voltage. What was more useful than the symptom talk was the honest bit about what people had cancelled, and how much of the fortnight had gone into pretending nothing was different.

Where the room started

Defensive, a little. Fatigue is the symptom nobody can see and nobody can defend, so people arrive having already argued with themselves about whether it counts. Pippa said she had sat down on a wall outside a shop last Tuesday, not because she needed to, because the wall was there — and then spent the walk home deciding she was being dramatic.

Three people in the room recognised the wall. One had sat on a bollard in a retail park. We spent a few minutes on that and the room relaxed considerably, which was worth more than any information I had.

What came up

The dull practical things that turn out to matter: whether people are drinking enough, and whether they are actually getting food in. A reduced appetite plus a warm fortnight is a very reliable route to feeling wrung out and it looks like something much worse.

Then the observation that changed the hour, from Pippa again. Once you start one of these, everything that happens to your body gets filed under it. Sore knee, low mood, bad week — all the medicine. She had not considered any other explanation in five weeks, and her sister had to point out that she had also been tired since March. Two other people said they had done exactly the same and one had had an ordinary iron problem missed for two months because of it.

Where we left it

Not with a plan. With a shape for an appointment: bring a timeline, not a theory. When it started, whether it is constant or patterned, what you have and have not managed to eat and drink, what else changed. A timeline lets a clinician think. A theory invites them to agree with you and stop looking.

Next: Weekly, Wednesdays 20:00 UK — see The first twelve weeks.