A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Australia and New Zealand

New Zealand availability and a long wait

Started 26 October 2024 · 19 replies · 218 hearts · read 3.2k times

OzrenZagreb, HR · 26 October 2024
1.7 years ago

New Zealand availability and a long wait — putting it in its own thread so it does not get lost in the check-in.

Anyone else here in my part of the world? I would like to compare notes.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

73

BodhiByron Bay, AU
#1

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6

TavitaApia, WS
#2

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

PetraFacilitatorMelbourne, Australia
#3

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

16me too 1

CatoAntwerp, BE
#4

Gently disagreeing with the opening post, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

14

MarenBremen, DE
#5

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

12

DotFalmouth, UK
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10

OttaviaBologna, IT
#7

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

16

AriaAuckland, NZ
#8

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8me too 6

BramwellRipon, UK
#9

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

14

HollisBath, UK
#10

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12me too 5

BevanSwansea, UK
#11

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

7me too 2

OrrinGlasgow, UK
#12

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10

CallaWellington, NZ
#13

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

12

GusStirling, UK
#14

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

11

TamarPlymouth, UK
#15

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

13

NoraDublin, IE
#16

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9

NyreeChristchurch, NZ
#17

I did exactly the same and felt terrible about it. You have not done anything wrong.

12

PetraFacilitatorMelbourne, Australia
#18

Reading the reply above, I recognised more of that than I expected to.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

15me too 3

OttiHarrogate, UK
#19

the reply above said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10