An employer plan that changed mid-year

Started 29 August 2024 · 24 replies · 292 hearts · read 2.5k times

IvorLlanelli, UK · 29 August 2024

1.9 years ago

An employer plan that changed mid-year Writing it down partly to work out what I actually think.

Anyone else here in my part of the world? I would like to compare notes.

The thing that has surprised me most is how much of this is about other people rather than about me.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

XanBerlin, DE

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

TamsinRedruth, UK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

EsiFacilitatorToronto, Canada

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

23me too 7

OrphBath, UK

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

AurelBucharest, RO

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

NolanHalifax, CA

the reply above said something I want to sit with for a second.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

MargueriteQuebec City, CA

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

OrrinGlasgow, UK

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

9me too 3

BassCoventry, UK

What the reply above described happened to me too, in a slightly different order.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9me too 4

KaiVancouver, CA

#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

NadjaBelgrade, RS

#11

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

OrvalWinnipeg, CA

#12

Building on what the reply above wrote rather than answering the original question.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

IvorLlanelli, UK

#13

Yes to the burping. It is real, it is unbeautiful, and it does settle.

XanBerlin, DE

#14

Reading the reply above, I recognised more of that than I expected to.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

16me too 3

TamsinRedruth, UK

#15

the reply above said something I want to sit with for a second.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

MapleToronto, CA

#16

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

OrphBath, UK

#17

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9me too 9

AurelBucharest, RO

#18

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

NolanHalifax, CA

#19

Please do not read the comments under news articles about this. I lost a fortnight to that.

14me too 1

MargueriteQuebec City, CA

#20

Reading the reply above, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

OrrinGlasgow, UK

#21

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

BassCoventry, UK

#22

I did exactly the same and felt terrible about it. You have not done anything wrong.

15me too 1

EsiFacilitatorToronto, Canada

#23

What the reply above described happened to me too, in a slightly different order.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

NadjaBelgrade, RS

#24

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.