Prunes, and the limits of prunes

Started 21 November 2024 · 24 replies · 247 hearts · read 4.6k times

TeganNewport, UK · 21 November 2024

1.7 years ago

Prunes, and the limits of prunes — putting it in its own thread so it does not get lost in the check-in.

Squeamish subject, so I am going to be plain about it and get it over with.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

TamzinPoole, UK

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11me too 3

TomásFacilitatorLisbon, Portugal

Reading the opening post, I recognised more of that than I expected to.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

XanBerlin, DE

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

VeraRiga, LV

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

PoppyLeeds, UK

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

GwythFishguard, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

IvorLlanelli, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

PerryCardigan, UK

Building on what the reply above wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

OdessaLviv, UA

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

HarlanDenver, CO

#10

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

TeganNewport, UK

#11

What helped was lowering my own expectations of the week rather than trying to hold the week together.

TamzinPoole, UK

#12

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

LeniLeipzig, DE

#13

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7me too 1

XanBerlin, DE

#14

Please do not read the comments under news articles about this. I lost a fortnight to that.

VeraRiga, LV

#15

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

PoppyLeeds, UK

#16

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

GwythFishguard, UK

#17

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

IvorLlanelli, UK

#18

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

PerryCardigan, UK

#19

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

OdessaLviv, UA

#20

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7me too 3

HarlanDenver, CO

#21

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

TeganNewport, UK

#22

What the reply above described happened to me too, in a slightly different order.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TomásFacilitatorLisbon, Portugal

#23

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

13me too 1

LeniLeipzig, DE

#24

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.