A gut that was already difficult before all this

Started 28 September 2024 · 22 replies · 228 hearts · read 2.6k times

TeganNewport, UK · 28 September 2024

1.8 years ago

A question rather than an update: A gut that was already difficult before all this

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

HarlanDenver, CO

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

14me too 6

IvorLlanelli, UK

Reading the opening post, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

VeraRiga, LV

the reply above — yes, and the bit that took me longest to accept was the next part.

Please do not read the comments under news articles about this. I lost a fortnight to that.

TomásFacilitatorLisbon, Portugal

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

PoppyLeeds, UK

I did exactly the same and felt terrible about it. You have not done anything wrong.

XanBerlin, DE

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

PerryCardigan, UK

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TamzinPoole, UK

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8me too 7

LeniLeipzig, DE

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

OdessaLviv, UA

#10

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

TeganNewport, UK

#11

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

HarlanDenver, CO

#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

IvorLlanelli, UK

#13

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

VeraRiga, LV

#14

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

GwythFishguard, UK

#15

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12me too 4

PoppyLeeds, UK

#16

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

XanBerlin, DE

#17

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

PerryCardigan, UK

#18

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

TamzinPoole, UK

#19

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

LeniLeipzig, DE

#20

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

TomásFacilitatorLisbon, Portugal

#21

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

TeganNewport, UK

#22

What the reply above described happened to me too, in a slightly different order.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8me too 1