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My nonna cooks and I eat what I can — we manage

Started 23 March 2025 · 15 replies · 148 hearts · read 2.8k times

OttiHarrogate, UK · 23 March 2025
1.3 years ago

A question rather than an update: My nonna cooks and I eat what I can — we manage

The logistics of this are defeating me more than the medicine is.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

49

NolCork, IE
#1

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

14

GildaTrieste, IT
#2

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

10

PerryCardigan, UK
#4

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

OsgarKillarney, IE
#5

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

GwilymCaernarfon, UK
#6

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10me too 9

KateBelfast, NI
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10

TavitaApia, WS
#8

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

6

Bell ANorwich, UK
#9

Please do not read the comments under news articles about this. I lost a fortnight to that.

7me too 7

WinkleWeymouth, UK
#10

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10

DelphiThessaloniki, GR
#11

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

11

AmbroseYork, UK
#12

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

WystanCheltenham, UK
#13

Building on what the reply above wrote rather than answering the original question.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

14

NolCork, IE
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12me too 2