Starters as a main course, permanently

Started 21 January 2025 · 16 replies · 170 hearts · read 2.1k times

NkosiJohannesburg, ZA · 21 January 2025

1.5 years ago

A question rather than an update: Starters as a main course, permanently

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

KateBelfast, NI

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

NolCork, IE

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

WystanCheltenham, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

8me too 6

NoorFacilitatorSingapore

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

GildaTrieste, IT

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

DelphiThessaloniki, GR

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10me too 1

AmbroseYork, UK

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

TavitaApia, WS

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

OttiHarrogate, UK

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5me too 5

GwilymCaernarfon, UK

#10

the reply above said something I want to sit with for a second.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

WinkleWeymouth, UK

#11

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

PerryCardigan, UK

#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

14me too 1

OsgarKillarney, IE

#13

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

NkosiJohannesburg, ZA

#14

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

NoorFacilitatorSingapore

#15

the reply above said something I want to sit with for a second.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

NolCork, IE

#16

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.