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Dining out

What I say when someone comments on my plate

Started 18 September 2024 · 18 replies · 218 hearts · read 3.5k times

DelphiThessaloniki, GR · 18 September 2024
1.8 years ago

Starting a thread on this because it keeps coming up in ones and twos: What I say when someone comments on my plate

The logistics of this are defeating me more than the medicine is.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

73

NolCork, IE
#1

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

TavitaApia, WS
#2

What helped was lowering my own expectations of the week rather than trying to hold the week together.

16

NoorFacilitatorSingapore
#3

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

21

GwilymCaernarfon, UK
#4

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

12me too 4

AmbroseYork, UK
#5

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

14me too 3

Bell ANorwich, UK
#6

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

KateBelfast, NI
#7

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

11

PerryCardigan, UK
#8

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6

OttiHarrogate, UK
#9

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

9

WystanCheltenham, UK
#10

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

11

GildaTrieste, IT
#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

13

OsgarKillarney, IE
#12

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10me too 4

NkosiJohannesburg, ZA
#13

Building on what the reply above wrote rather than answering the original question.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11

DelphiThessaloniki, GR
#14

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9

NolCork, IE
#15

Reading the reply above, I recognised more of that than I expected to.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

14me too 8

TavitaApia, WS
#16

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

12

NoorFacilitatorSingapore
#17

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

23

GwilymCaernarfon, UK
#18

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9