Old thoughts arriving with a new mechanism

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

Building on what the opening post wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

I did exactly the same and felt terrible about it. You have not done anything wrong.

the reply above — yes, and the bit that took me longest to accept was the next part.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.