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Recovery-aware does not mean I am made of glass

Started 24 February 2025 · 15 replies · 151 hearts · read 1.6k times

GwionBangor, UK · 24 February 2025
1.4 years ago

Something I have been sitting with: Recovery-aware does not mean I am made of glass Not looking for advice so much as other people's experience.

I have been sitting on this for a month.

The thing that has surprised me most is how much of this is about other people rather than about me.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

50

OllieCardiff, UK
#1

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

GrizelKirkcaldy, UK
#2

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

JonahFacilitatorCork, Ireland
#3

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

23

SadieSalford, UK
#4

Gently disagreeing with the reply above, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

9

PádraigGalway, IE
#5

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7me too 2

OrlaithDonegal, IE
#6

I did exactly the same and felt terrible about it. You have not done anything wrong.

11

OsricSalisbury, UK
#7

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

6

RunaAarhus, DK
#8

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10

RenataKraków, PL
#9

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

BramwellNottingham, UK
#10

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

12me too 9

QuinGuildford, UK
#11

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9

BroganCumbernauld, UK
#12

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

5

SableCape Town, ZA
#13

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

JonahFacilitatorCork, Ireland
#14

Building on what the reply above wrote rather than answering the original question.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

13

OllieCardiff, UK
#15

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9