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Weight-blind appointments and how I asked for them

Started 8 January 2025 · 19 replies · 206 hearts · read 4k times

PádraigGalway, IE · 8 January 2025
1.5 years ago

A question rather than an update: Weight-blind appointments and how I asked for them

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

69

OsricSalisbury, UK
#1

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

JonahFacilitatorCork, Ireland
#2

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

20

SableCape Town, ZA
#3

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

10me too 5

RenataKraków, PL
#4

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12

QuinGuildford, UK
#5

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

6

OrlaithDonegal, IE
#6

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

BramwellNottingham, UK
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

SadieSalford, UK
#8

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

13me too 9

GrizelKirkcaldy, UK
#9

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

10

RunaAarhus, DK
#10

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6me too 5

BroganCumbernauld, UK
#11

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10

GwionBangor, UK
#12

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

NanNeath, UK
#13

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

PádraigGalway, IE
#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

13me too 1

OsricSalisbury, UK
#15

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

OllieCardiff, UK
#16

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

4

SableCape Town, ZA
#17

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8me too 5

JonahFacilitatorCork, Ireland
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

24

QuinGuildford, UK
#19

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13