A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

When the noise goes quiet

The noise came back at a lower volume and stayed there

Started 1 May 2024 · 21 replies · 259 hearts · read 3.5k times

TavishIsle of Skye, UK · 1 May 2024
2.2 years ago

Something I have been sitting with: The noise came back at a lower volume and stayed there Not looking for advice so much as other people's experience.

This is a difficult one to write and I have deleted it twice.

The thing that has surprised me most is how much of this is about other people rather than about me.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Not looking for a plan. Just company and whatever anyone has found.

86

DillyNewport, UK
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

15

JonahFacilitatorCork, Ireland
#2

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

23

SaraOslo, NO
#3

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

14

LuPreston, UK
#4

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11me too 5

BodhiByron Bay, AU
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9

OllyReading, UK
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

13

IzzyWatford, UK
#7

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

10

AnnaAthens, GR
#8

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

11

CloverTotnes, UK
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7me too 3

OsgarKillarney, IE
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

14

NualaArmagh, NI
#11

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

13

OdileMontreal, CA
#12

I did exactly the same and felt terrible about it. You have not done anything wrong.

9me too 5

BramGhent, BE
#13

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

8

MapleToronto, CA
#14

Building on what the reply above wrote rather than answering the original question.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

LenaMunich, DE
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13me too 2

MaryamBirmingham, UK
#16

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

RinManchester, UK
#17

the reply above said something I want to sit with for a second.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

12

WinnieCarlisle, UK
#18

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

BronwenBarry, UK
#19

Gently disagreeing with the reply above, or rather adding the other half of it.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

JonahFacilitatorCork, Ireland
#20

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

27

Ozzy GWalsall, UK
#21

Please do not read the comments under news articles about this. I lost a fortnight to that.

11