Second-level appeal, granted, eleven weeks

Started 13 July 2025 · 21 replies · 199 hearts · read 3.3k times

TarnKeswick, UK · 13 July 2025

about a year ago

Starting a thread on this because it keeps coming up in ones and twos: Second-level appeal, granted, eleven weeks

This is the boring administrative kind of problem, which I gather is the kind that actually gets solved.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

BrimHalifax, UK

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

PetraFacilitatorMelbourne, Australia

the opening post said something I want to sit with for a second.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

NkechiAbuja, NG

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9me too 9

ColNewquay, UK

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

FitzLimerick, IE

Building on what the reply above wrote rather than answering the original question.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

GroverPortland, ME

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

MarthaCork, IE

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

ZebAustin, TX

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

TiernanOmagh, NI

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

MoBradford, UK

#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

8me too 2

RayBarnsley, UK

#11

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

BodilÅlesund, NO

#12

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

TasnimBradford, UK

#13

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

4me too 3

TheaBergen, NO

#14

Reading the reply above, I recognised more of that than I expected to.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

IdaRotterdam, NL

#15

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

TarnKeswick, UK

#16

Building on what the reply above wrote rather than answering the original question.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

BrimHalifax, UK

#17

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

WinkleWeymouth, UK

#18

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

10me too 7

NkechiAbuja, NG

#19

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

13me too 4

PetraFacilitatorMelbourne, Australia

#20

Building on what the reply above wrote rather than answering the original question.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

FitzLimerick, IE

#21

No advice, just recognition. That sounds exhausting and I am sorry you are in it.