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Appealing on cardiovascular indication instead

Started 25 December 2024 · 20 replies · 219 hearts · read 3.6k times

RayBarnsley, UK · 25 December 2024
1.6 years ago

Appealing on cardiovascular indication instead — putting it in its own thread so it does not get lost in the check-in.

Money post. No apologies, this circle is for it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

73

MarthaCork, IE
#1

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

11

FitzLimerick, IE
#2

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

TarnKeswick, UK
#3

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

13

PetraFacilitatorMelbourne, Australia
#4

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

20me too 2

NkechiAbuja, NG
#5

Yes to the burping. It is real, it is unbeautiful, and it does settle.

10

ZebAustin, TX
#6

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8

BrimHalifax, UK
#7

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

14me too 6

MoBradford, UK
#8

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

6

BodilÅlesund, NO
#9

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8me too 7

GroverPortland, ME
#10

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

12

IdaRotterdam, NL
#11

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7

TiernanOmagh, NI
#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9me too 4

WinkleWeymouth, UK
#13

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

10

TheaBergen, NO
#14

I did exactly the same and felt terrible about it. You have not done anything wrong.

13

TasnimBradford, UK
#15

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

RayBarnsley, UK
#16

Reading the reply above, I recognised more of that than I expected to.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

10

MarthaCork, IE
#17

the reply above said something I want to sit with for a second.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10me too 2

FitzLimerick, IE
#18

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

12

PetraFacilitatorMelbourne, Australia
#19

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

18

ColNewquay, UK
#20

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13