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Do I need to change how I eat straight away

Started 15 March 2026 · 18 replies · 133 hearts · read 1.9k times

CarlMiddlesbrough, UK · 15 March 2026
4 months ago

Something I have been sitting with: Do I need to change how I eat straight away Not looking for advice so much as other people's experience.

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

44

TommieEly, UK
#1

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

EsiFacilitatorToronto, Canada
#2

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

13

TasnimBradford, UK
#3

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

5

TychoLeiden, NL
#4

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

5me too 8

OsipTbilisi, GE
#5

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7

TorinBelfast, NI
#6

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7

SephNorwich, UK
#7

Please do not read the comments under news articles about this. I lost a fortnight to that.

7me too 5

SaskiaThe Hague, NL
#8

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

SerenLlandudno, UK
#9

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

4

DelphiThessaloniki, GR
#10

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

10me too 5

BodhiByron Bay, AU
#11

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

PerduMontpellier, FR
#12

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

7me too 9

CormacWaterford, IE
#13

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9

CarlMiddlesbrough, UK
#14

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8

TommieEly, UK
#15

Yes to the burping. It is real, it is unbeautiful, and it does settle.

2me too 4

OllieCardiff, UK
#16

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

7

EsiFacilitatorToronto, Canada
#17

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

10

TychoLeiden, NL
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9