How long before you noticed anything at all

Started 13 January 2026 · 13 replies · 101 hearts · read 801 times

DelphiThessaloniki, GR · 13 January 2026

6 months ago

Something I have been sitting with: How long before you noticed anything at all Not looking for advice so much as other people's experience.

I do not know if this belongs in this circle. Move me if not.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

Not looking for a plan. Just company and whatever anyone has found.

SaskiaThe Hague, NL

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

TychoLeiden, NL

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

6me too 4

PerduMontpellier, FR

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

EsiFacilitatorToronto, Canada

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

CormacWaterford, IE

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

OllieCardiff, UK

Yes to the burping. It is real, it is unbeautiful, and it does settle.

TorinBelfast, NI

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

BodhiByron Bay, AU

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

TasnimBradford, UK

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

SerenLlandudno, UK

#10

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

TommieEly, UK

#11

Reading the reply above, I recognised more of that than I expected to.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

EsiFacilitatorToronto, Canada

#12

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

OsipTbilisi, GE

#13

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.