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Grandchildren, the floor, and why I am doing this

Started 22 October 2024 · 21 replies · 234 hearts · read 1.8k times

EdwynNewcastle, UK · 22 October 2024
1.7 years ago

Starting a thread on this because it keeps coming up in ones and twos: Grandchildren, the floor, and why I am doing this

Practical question, and possibly a silly one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Sorry for the length. If anyone has been here, I would very much like to hear it.

78

BertrandToulouse, FR
#1

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

11

OllyReading, UK
#2

the opening post — yes, and the bit that took me longest to accept was the next part.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

14

RenFacilitatorBristol, UK
#3

Reading the opening post, I recognised more of that than I expected to.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

20me too 4

LucasSão Paulo, BR
#4

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

BrimHalifax, UK
#5

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

OsmanAnkara, TR
#6

Please do not read the comments under news articles about this. I lost a fortnight to that.

11me too 8

PietPretoria, ZA
#7

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8

NikoTbilisi, GE
#8

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

13

EdwynNewcastle, UK
#9

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6me too 3

BertrandToulouse, FR
#10

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

10

OllyReading, UK
#11

the reply above said something I want to sit with for a second.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

OttilieCheshire, UK
#12

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

12

LucasSão Paulo, BR
#13

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

BrimHalifax, UK
#14

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11

OsmanAnkara, TR
#15

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 1

PietPretoria, ZA
#16

Building on what the reply above wrote rather than answering the original question.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13

NikoTbilisi, GE
#17

Gently disagreeing with the reply above, or rather adding the other half of it.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

EdwynNewcastle, UK
#18

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

15

BertrandToulouse, FR
#19

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12

Reading the reply above, I recognised more of that than I expected to.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

16

OttilieCheshire, UK
#21

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

12me too 4