AOD-9604 and a trial that did not find what people say it found

Started 27 July 2025 · 20 replies · 192 hearts · read 4k times

BunnyWeston-super-Mare, UK · 27 July 2025

12 months ago

AOD-9604 and a trial that did not find what people say it found Writing it down partly to work out what I actually think.

Putting this here because I do not want to be sold anything, I want to know what is actually established.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

MorayElgin, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

SunilFacilitatorBirmingham, UK

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

FabianBasel, CH

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7me too 4

AbramAmsterdam, NL

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

TacitaRome, IT

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

IdrisCardiff, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

NevGrimsby, UK

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

IvorLlanelli, UK

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

6me too 9

TamarPlymouth, UK

What helped was lowering my own expectations of the week rather than trying to hold the week together.

MableBolton, UK

#10

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

PolaGdańsk, PL

#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

TobinCork, IE

#12

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

WellsChester, UK

#13

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

BunnyWeston-super-Mare, UK

#14

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

MorayElgin, UK

#15

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

FlossieShrewsbury, UK

#16

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

FabianBasel, CH

#17

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

AbramAmsterdam, NL

#18

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

11me too 5

SunilFacilitatorBirmingham, UK

#19

the reply above said something I want to sit with for a second.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

IdrisCardiff, UK

#20

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.