A shortage forced my gap and my body noticed

Started 27 February 2026 · 13 replies · 91 hearts · read 1k times

Gwen DAberystwyth, UK · 27 February 2026

5 months ago

Starting a thread on this because it keeps coming up in ones and twos: A shortage forced my gap and my body noticed

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

BobbieRochdale, UK

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

8me too 7

OttilieCheshire, UK

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

ZoraSarajevo, BA

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

BenediktFacilitatorVienna, Austria

the opening post said something I want to sit with for a second.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

InêsPorto, PT

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

NikolaiSofia, BG

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

3me too 3

MableBolton, UK

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

NerysRhyl, UK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

Gwen DAberystwyth, UK

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BobbieRochdale, UK

#10

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

OttilieCheshire, UK

#11

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

BenediktFacilitatorVienna, Austria

#12

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

AurelBucharest, RO

#13

I did exactly the same and felt terrible about it. You have not done anything wrong.