Friends asking me to share and how I said no

Started 28 November 2025 · 16 replies · 137 hearts · read 1k times

ShadeIbadan, NG · 28 November 2025

8 months ago

Starting a thread on this because it keeps coming up in ones and twos: Friends asking me to share and how I said no

The logistics of this are defeating me more than the medicine is.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

DashSeattle, WA

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

PetraFacilitatorMelbourne, Australia

What the opening post described happened to me too, in a slightly different order.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

NevGrimsby, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

MintaColchester, UK

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

ZoëHackney, UK

Please do not read the comments under news articles about this. I lost a fortnight to that.

PrueChester, UK

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8me too 7

TiernanOmagh, NI

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

BeaDublin, IE

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

Bell ANorwich, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8me too 5

EspeSeville, ES

#10

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

BevanSwansea, UK

#11

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

ObieNashville, TN

#12

Gently disagreeing with the reply above, or rather adding the other half of it.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

TansyLudlow, UK

#13

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10me too 6

PriyaReading, UK

#14

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

PetraFacilitatorMelbourne, Australia

#15

What the reply above described happened to me too, in a slightly different order.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

OllyReading, UK

#16

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.