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The plateau

My strength kept improving while nothing else did

Started 12 January 2026 · 10 replies · 78 hearts · read 665 times

BrammyBelfast, NI · 12 January 2026
6 months ago

A question rather than an update: My strength kept improving while nothing else did

Writing this partly to ask and partly because writing it down usually tells me what I think.

The thing that has surprised me most is how much of this is about other people rather than about me.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Not looking for a plan. Just company and whatever anyone has found.

26

GudrunAkureyri, IS
#1

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

5me too 7

OsipTbilisi, GE
#2

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

4

VeraRiga, LV
#3

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

6

AdaFacilitatorManchester, UK
#4

the opening post said something I want to sit with for a second.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

10

GittaBonn, DE
#5

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

NadirCasablanca, MA
#6

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7me too 3

LlianCarmarthen, UK
#7

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

OmarAmman, JO
#8

Please do not read the comments under news articles about this. I lost a fortnight to that.

6

AdaFacilitatorManchester, UK
#9

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

16

RuaridhFort William, UK
#10

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

8