Hair shedding with two possible causes

Started 11 July 2025 · 22 replies · 207 hearts · read 3.2k times

Bryn MNeath, UK · 11 July 2025

about a year ago

Hair shedding with two possible causes Writing it down partly to work out what I actually think.

I have avoided asking about this for six weeks out of pure embarrassment.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

PrueChester, UK

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

MinnieDoncaster, UK

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

TansyLudlow, UK

What the opening post described happened to me too, in a slightly different order.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9me too 9

MiraFacilitatorRotterdam, Netherlands

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

PersisBristol, UK

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

GrizelKirkcaldy, UK

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

GusStirling, UK

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

GaelanInverurie, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7me too 5

ÖzlemIzmir, TR

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

PerlaManila, PH

#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

5me too 4

PerryCardigan, UK

#11

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

12me too 9

LlianCarmarthen, UK

#12

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BryonyMalvern, UK

#13

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

Bryn MNeath, UK

#14

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

PrueChester, UK

#15

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

MinnieDoncaster, UK

#16

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

TansyLudlow, UK

#17

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

MaudGhent, BE

#18

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11me too 1

PersisBristol, UK

#19

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

GrizelKirkcaldy, UK

#20

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

MiraFacilitatorRotterdam, Netherlands

#21

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

20me too 5

GaelanInverurie, UK

#22

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.