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Thyroid

My dose of thyroid medication changed twice in a year

Started 10 January 2025 · 24 replies · 272 hearts · read 5.3k times

MinnieDoncaster, UK · 10 January 2025
1.5 years ago

A question rather than an update: My dose of thyroid medication changed twice in a year

I have avoided asking about this for six weeks out of pure embarrassment.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

The thing that has surprised me most is how much of this is about other people rather than about me.

Not looking for a plan. Just company and whatever anyone has found.

91

ÖzlemIzmir, TR
#1

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

14

PerlaManila, PH
#2

Please do not read the comments under news articles about this. I lost a fortnight to that.

6

GusStirling, UK
#3

What the opening post described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

MiraFacilitatorRotterdam, Netherlands
#4

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

17

BryonyMalvern, UK
#5

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

13

PerryCardigan, UK
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11me too 4

PersisBristol, UK
#7

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

LlianCarmarthen, UK
#8

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

MaudGhent, BE
#9

What the reply above described happened to me too, in a slightly different order.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9

GaelanInverurie, UK
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

14

Bryn MNeath, UK
#11

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8me too 1

PrueChester, UK
#12

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

11

GrizelKirkcaldy, UK
#13

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

MinnieDoncaster, UK
#14

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

ÖzlemIzmir, TR
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

PerlaManila, PH
#16

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

12me too 5

GusStirling, UK
#17

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

TansyLudlow, UK
#18

What the reply above described happened to me too, in a slightly different order.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13

BryonyMalvern, UK
#19

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

13

PerryCardigan, UK
#20

Reading the reply above, I recognised more of that than I expected to.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

15

PersisBristol, UK
#21

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12me too 5

LlianCarmarthen, UK
#22

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

MiraFacilitatorRotterdam, Netherlands
#23

Building on what the reply above wrote rather than answering the original question.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

24

GaelanInverurie, UK
#24

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6