My TSH moved and my GP adjusted the dose

Started 21 November 2024 · 19 replies · 239 hearts · read 4.1k times

MinnieDoncaster, UK · 21 November 2024

1.7 years ago

My TSH moved and my GP adjusted the dose Writing it down partly to work out what I actually think.

Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

PerlaManila, PH

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

MiraFacilitatorRotterdam, Netherlands

Building on what the opening post wrote rather than answering the original question.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

21me too 8

Bryn MNeath, UK

the reply above said something I want to sit with for a second.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

BryonyMalvern, UK

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

GrizelKirkcaldy, UK

the reply above said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

ÖzlemIzmir, TR

Yes to the burping. It is real, it is unbeautiful, and it does settle.

PerryCardigan, UK

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

LlianCarmarthen, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

GaelanInverurie, UK

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

PersisBristol, UK

#10

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

PrueChester, UK

#11

Reading the reply above, I recognised more of that than I expected to.

I did exactly the same and felt terrible about it. You have not done anything wrong.

TansyLudlow, UK

#12

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

MaudGhent, BE

#13

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

15me too 3

MinnieDoncaster, UK

#14

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

PerlaManila, PH

#15

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

GusStirling, UK

#16

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11me too 7

Bryn MNeath, UK

#17

What helped was lowering my own expectations of the week rather than trying to hold the week together.

MiraFacilitatorRotterdam, Netherlands

#18

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

GrizelKirkcaldy, UK

#19

Please do not read the comments under news articles about this. I lost a fortnight to that.