Ramadan, travel and injection timing

Started 12 November 2024 · 24 replies · 282 hearts · read 3.4k times

NissaHaifa, IL · 12 November 2024

1.7 years ago

Ramadan, travel and injection timing — putting it in its own thread so it does not get lost in the check-in.

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

AriaAuckland, NZ

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 4

DuncanPerth, UK

Gently disagreeing with the opening post, or rather adding the other half of it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

NoorFacilitatorSingapore

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

MinnieDoncaster, UK

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

OzzyAdelaide, AU

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

TullaTralee, IE

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

NevGrimsby, UK

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

PrunellaBury St Edmunds, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

13me too 8

TamarPlymouth, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

BlueStroud, UK

#10

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

MimiHong Kong

#11

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

IzoldaVilnius, LT

#12

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

NoleneDurban, ZA

#13

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

NúriaBarcelona, ES

#14

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6me too 9

OzrenZagreb, HR

#15

Please do not read the comments under news articles about this. I lost a fortnight to that.

7me too 8

VeraRiga, LV

#16

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BrackenHexham, UK

#17

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

TillyHereford, UK

#18

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

NissaHaifa, IL

#19

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

AriaAuckland, NZ

#20

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

DuncanPerth, UK

#21

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

SalmaManchester, UK

#22

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

10me too 8

NoorFacilitatorSingapore

#23

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

OzzyAdelaide, AU

#24

the reply above said something I want to sit with for a second.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.