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Being the youngest person in every waiting room

Started 9 May 2026 · 13 replies · 83 hearts · read 1.2k times

NazneenDhaka, BD · 9 May 2026
2 months ago

Being the youngest person in every waiting room Writing it down partly to work out what I actually think.

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

28

TobinCork, IE
#1

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

5

KikiFacilitatorGlasgow, UK
#2

Reading the opening post, I recognised more of that than I expected to.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

11

BarnabyWinchester, UK
#3

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6me too 8

NyalaAddis Ababa, ET
#4

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

5

TorinBelfast, NI
#5

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

5

GabePhoenix, AZ
#6

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

TallisEly, UK
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

9me too 3

GwionBangor, UK
#8

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

4

AikoOsaka, JP
#9

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6

LinneaTurku, FI
#10

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

3

TorrinAberdeen, UK
#11

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

5

KikiFacilitatorGlasgow, UK
#12

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

13

GwenBangor, UK
#13

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

4