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A difficult history with food and starting this anyway

Started 19 January 2026 · 17 replies · 138 hearts · read 2.2k times

GwionBangor, UK · 19 January 2026
6 months ago

A difficult history with food and starting this anyway Writing it down partly to work out what I actually think.

Anyone else navigating this? I feel as though every piece of advice I read was written for someone with a completely different week.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

46

NyalaAddis Ababa, ET
#1

Please do not read the comments under news articles about this. I lost a fortnight to that.

7me too 8

LinneaTurku, FI
#2

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

KikiFacilitatorGlasgow, UK
#3

the reply above said something I want to sit with for a second.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

16

TorrinAberdeen, UK
#4

What helped was lowering my own expectations of the week rather than trying to hold the week together.

5

BarnabyWinchester, UK
#5

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

6

TobinCork, IE
#6

Building on what the reply above wrote rather than answering the original question.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

7

TorinBelfast, NI
#7

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

TildaCambridge, UK
#8

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6

FlorrieBlackburn, UK
#9

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

AikoOsaka, JP
#10

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7

TallisEly, UK
#11

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

OsmanAnkara, TR
#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9

GwenBangor, UK
#13

What the reply above described happened to me too, in a slightly different order.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

11

NazneenDhaka, BD
#14

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5

GwionBangor, UK
#15

Reading the reply above, I recognised more of that than I expected to.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

4

KikiFacilitatorGlasgow, UK
#16

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

16me too 3

LinneaTurku, FI
#17

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

7