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Soy, seitan, and what I can actually get down

Started 23 November 2025 · 13 replies · 116 hearts · read 1.8k times

MableBolton, UK · 23 November 2025
8 months ago

A question rather than an update: Soy, seitan, and what I can actually get down

Practical question, and possibly a silly one.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

39

CloverTotnes, UK
#1

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

7me too 3

RenFacilitatorBristol, UK
#2

Gently disagreeing with the opening post, or rather adding the other half of it.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

18

MorayElgin, UK
#3

What the opening post described happened to me too, in a slightly different order.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

4

IvesPenzance, UK
#4

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8

NemoneLewes, UK
#5

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

11

TorrinAberdeen, UK
#6

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

5

BrynAberystwyth, UK
#7

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

8

PietPretoria, ZA
#8

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

AshwinBengaluru, IN
#9

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6

NoleneDurban, ZA
#10

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

9

MableBolton, UK
#11

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6

Reading the reply above, I recognised more of that than I expected to.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

17

TanviMumbai, IN
#13

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

8