Journal
Matt’s journal
Eighteen months steady. Happy to talk about the boring part.
Slept through
week 52tired energy 2
Waking at four again. Not anxious, just awake, lying there listening to the boiler. Repeat study came back and the apnoea is much reduced. Ten years of that mask. Slept…
No project
week 49content energy 53 replies
Two years. My only news is that there is no news, and I have come back specifically to say so, because nobody wrote this part down for me. Reduced to a maintenance dose. Same…
Just Wednesdays
week 46settled energy 54 replies
Two years. My only news is that there is no news, and I have come back specifically to say so, because nobody wrote this part down for me. Reduced to a maintenance dose. Same…
Reduced
week 46flat energy 13 replies
Two years. My only news is that there is no news, and I have come back specifically to say so, because nobody wrote this part down for me. Reduced to a maintenance dose with…
I nearly did not write
week 43fine energy 23 replies
Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. I nearly did not write…
Across the day
week 40steady energy 53 replies
This week: Was undereating without realising. The nurse asked a plain question about what I had actually eaten in the last two days and I heard my own answer. Protein first,…
How are you doing on a Wednesday
week 37held energy 34 replies
Nobody has ever asked me how I was doing on a Wednesday before. She had a bad week and I had a fine one, and next month it will be the other way round. That is the whole…
No mask
week 34rested energy 5
This week: Waking at four again. Not anxious, just awake, lying there listening to the boiler. Repeat study came back and the apnoea is much reduced. Ten years of that mask.…
Nothing to report
week 31fine energy 23 replies
This week: I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Quiet. Injection…
Flat, whole night
week 29grateful energy 23 replies
Carried both bags up in one go. Small thing. Wrote it down. Cycled to work and back for a full month. Swam. First time since school. Two lengths, badly, grinning. Sat on the…
Quiet
week 28steady energy 53 replies
Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. Nothing to report. Writing it down anyway, on the theory that a journal made only of…
I nearly did not write
week 25fine energy 33 replies
This week: Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. I nearly did…
Nothing to report
week 22flat energy 13 replies
I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Quiet. Injection Tuesday, mild…
Quiet
week 18flat energy 33 replies
This week: Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. Nothing to report. Writing it down anyway, on the theory that a journal made…
Anchored to the shifts
week 15organised energy 5
This week: Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. Batch cooked on a…
Protein first
week 12steady energy 13 replies
Protein first, everything else after. It is not interesting advice and it is the only advice that has changed anything. Was undereating without realising. The nurse asked a…
The bad fortnight
week 10flat energy 32 replies
This week: The nausea has a shape to it now. Thursday teatime it starts, Friday it peaks, Saturday afternoon it lifts. Once I could see the pattern it stopped feeling like…
Nine minutes
week 9frustrated energy 32 replies
This week: Nine minutes. I took three written questions and got three answers, which is the best return I have ever had from an appointment. Left with a printout I could not…
Sunday night, four lines
week 7held energy 44 replies
This week: My buddy noticed something in my journal before I did and asked me a very gentle question about it. Nobody has ever asked me how I was doing on a Wednesday before.…
I nearly did not write
week 3steady energy 33 replies
Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. I nearly did not write…