Journal
Romy’s journal
Maintenance is my favourite word.
Three cool bags and a thermometer
week 33organised energy 32 replies
Short one tonight. Batch cooked on a good day for the bad days. Six labelled boxes in the freezer and a great deal of smugness. Anchored injection day to my shift pattern…
No news
week 31fine energy 23 replies
An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal…
Awake at four
week 30foggy energy 5
Late, and writing anyway. The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. Waking at four again. Not anxious,…
She stopped the room
week 29warm energy 3
Went for the practical answers and stayed for the company, which I gather is what everybody does. The facilitator stopped the room when four of us were talking at once and…
Fewer, heavier
week 28tired but good energy 22 replies
Walked instead of the bus all week. Not a programme. Just walking. Two sessions this week, both short, both done. Ren keeps saying that two a week for two years beats a…
Nothing to report
week 26steady energy 31 reply
Short one tonight. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. No news. The dog is well, the weather has been foul, and I have…
Starters as a main
week 25awkward energy 51 reply
A quiet week. A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word. My mother cooks. That is…
Both bags, one go
week 24grateful energy 51 reply
Walked into town and back, which I stopped doing years ago without ever deciding to stop. Full shift on my feet and my knees did not stop me. That has not happened in about…
An hour on the floor
week 23quietly delighted energy 51 reply
Short one tonight. Swam. First time since school. Two lengths, badly, grinning. Got down on the floor and back up again unaided. I have not been able to do that since 2021…
She reduced it
week 21brisk energy 42 replies
Short one tonight. A locum who had clearly read nothing. I was polite, I got what I needed, and I have booked with my own GP for next month. Nine minutes. I took three…
What is your secret
week 20loved energy 31 reply
Short one tonight. A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word. My mother cooks.…
Where the pen lives
week 19organised energy 3
Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. Two lines a day in a paper…
No news
week 17steady energy 43 replies
Short one tonight. No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. I nearly did not…
Six labelled boxes
week 15organised energy 22 replies
A quiet week. Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice changed a clinical decision. New sharps bin, and a plan for…
Grip
week 14tired but good energy 12 replies
Two sessions this week, both short, both done. Ren keeps saying that two a week for two years beats a perfect programme abandoned in March, and he is annoyingly right. Eight…
A rough few days
week 13sore energy 34 replies
Headache for three days running. It turned out I had barely drunk anything since Tuesday. Water, then a slow improvement, then feeling faintly stupid. Mild. Sore at the…
Paired
week 12held energy 44 replies
Late, and writing anyway. Nobody has ever asked me how I was doing on a Wednesday before. She had a bad week and I had a fine one, and next month it will be the other way…
Anchored to the shifts
week 11organised energy 12 replies
Late, and writing anyway. New sharps bin, and a plan for what happens to it when I move in September. Tested three cool bags against a thermometer this weekend because I am…
Eight minutes and a chair
week 10tired but good energy 52 replies
Late, and writing anyway. Eight minutes and a chair. That is the whole programme. Tuesday and Friday. I have done it for eleven weeks. Grip strength has gone off and I…
Nine minutes
week 9frustrated energy 12 replies
Late, and writing anyway. Nine minutes. I took three written questions and got three answers, which is the best return I have ever had from an appointment. She reduced one of…