A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Carers

Managing my mother's injections and her dementia

Started 14 June 2026 · 14 replies · 85 hearts · read 1.2k times

IdrisCardiff, UK · 14 June 2026
1 month ago

A question rather than an update: Managing my mother's injections and her dementia

Practical question, and possibly a silly one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

28

NkosiJohannesburg, ZA
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

12

ÖzlemIzmir, TR
#3

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7

SableCape Town, ZA
#4

the opening post said something I want to sit with for a second.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

6me too 9

LinnetKendal, UK
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

5

SerenLlandudno, UK
#6

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8

PipBristol, UK
#7

Building on what the reply above wrote rather than answering the original question.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

2me too 4

BrennaEnniskillen, NI
#8

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

4

PamSouthport, UK
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

3

FitzLimerick, IE
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

5

KeeleyBlackpool, UK
#11

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

5

ZoraSarajevo, BA
#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

5

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

8me too 6

GigiNaples, IT
#14

Reading the reply above, I recognised more of that than I expected to.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

7