The fortnight after the last dose

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

the reply above said something I want to sit with for a second.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

Yes to the burping. It is real, it is unbeautiful, and it does settle.

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.