Nobody told me about the burping

Started 28 May 2025 · 17 replies · 148 hearts · read 3.1k times

SindriReykjavík, IS · 28 May 2025

about a year ago

Nobody told me about the burping — putting it in its own thread so it does not get lost in the check-in.

I do not know if this belongs in this circle. Move me if not.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Thanks all. Genuinely.

OllieCardiff, UK

Please do not read the comments under news articles about this. I lost a fortnight to that.

NellaUtrecht, NL

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

EsiFacilitatorToronto, Canada

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

NikoTbilisi, GE

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10me too 6

OndineLausanne, CH

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

TavishIsle of Skye, UK

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

Ozzy GWalsall, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8me too 2

BramleyBath, UK

What helped was lowering my own expectations of the week rather than trying to hold the week together.

StefanZurich, CH

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

NualaArmagh, NI

#10

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

KateBelfast, NI

#11

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

MargueriteQuebec City, CA

#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

IlyaAlmaty, KZ

#13

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

BlueStroud, UK

#14

I did exactly the same and felt terrible about it. You have not done anything wrong.

SindriReykjavík, IS

#15

Reading the reply above, I recognised more of that than I expected to.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10me too 7

EsiFacilitatorToronto, Canada

#16

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

NellaUtrecht, NL

#17

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.