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The first twelve weeks

Injection day anxiety is worse than the injection

Started 9 December 2024 · 18 replies · 185 hearts · read 2.3k times

OllieCardiff, UK · 9 December 2024
1.6 years ago

Injection day anxiety is worse than the injection — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Sorry for the length. If anyone has been here, I would very much like to hear it.

62

Ozzy GWalsall, UK
#1

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6

NualaArmagh, NI
#2

Gently disagreeing with the opening post, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

12

KateBelfast, NI
#3

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9me too 8

EsiFacilitatorToronto, Canada
#4

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

18

NellaUtrecht, NL
#5

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

11

NikoTbilisi, GE
#6

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

10

IlyaAlmaty, KZ
#7

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

10

BramleyBath, UK
#8

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

9me too 8

TavishIsle of Skye, UK
#9

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

13

BlueStroud, UK
#10

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8me too 3

OndineLausanne, CH
#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10me too 5

StefanZurich, CH
#12

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

11

SindriReykjavík, IS
#13

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7

MargueriteQuebec City, CA
#14

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10

OllieCardiff, UK
#15

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

Ozzy GWalsall, UK
#16

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

13

EsiFacilitatorToronto, Canada
#17

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

13

KateBelfast, NI
#18

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9me too 6