I want to skip ahead and I know that is a bad idea

Started 23 July 2024 · 24 replies · 270 hearts · read 4.9k times

StefanZurich, CH · 23 July 2024

2 years ago

Starting a thread on this because it keeps coming up in ones and twos: I want to skip ahead and I know that is a bad idea

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

MargueriteQuebec City, CA

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

EsiFacilitatorToronto, Canada

Building on what the opening post wrote rather than answering the original question.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

BramleyBath, UK

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

KateBelfast, NI

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

11me too 6

OllieCardiff, UK

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

OndineLausanne, CH

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

Obi OEnugu, NG

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9me too 3

NualaArmagh, NI

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

BlueStroud, UK

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8me too 6

NikoTbilisi, GE

#10

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

TavishIsle of Skye, UK

#11

Reading the reply above, I recognised more of that than I expected to.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

NellaUtrecht, NL

#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

IlyaAlmaty, KZ

#13

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

SindriReykjavík, IS

#14

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

12me too 7

StefanZurich, CH

#15

I did exactly the same and felt terrible about it. You have not done anything wrong.

MargueriteQuebec City, CA

#16

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

Ozzy GWalsall, UK

#17

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8me too 2

BramleyBath, UK

#18

Gently disagreeing with the reply above, or rather adding the other half of it.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

KateBelfast, NI

#19

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

OllieCardiff, UK

#20

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

OndineLausanne, CH

#21

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

9me too 8

Obi OEnugu, NG

#22

What helped was lowering my own expectations of the week rather than trying to hold the week together.

EsiFacilitatorToronto, Canada

#23

the reply above said something I want to sit with for a second.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

BlueStroud, UK

#24

Please do not read the comments under news articles about this. I lost a fortnight to that.